Kyle "Kylie" Roger : Kyle meets Slush, a graduation present from the staff.

3.21.2007

Kyle meets Slush, a graduation present from the staff.

2 comments:

Brenda said...: Hi Kyle,

We are so happy to hear how well your treatment is going! I'm so glad your eyes are working. I wish we could see you on the soccer fields this year. Josh is not playing soccer this season, he decided to play t-ball. I think we will have to go to a few games to cheer our old team on. Maybe we will see you there! You are such an inspiration to all of us.

Christen, you exude the essence of "strong women", no wonder where Kyle gets it from :-) I know we don't know each that well, but your still my green eyed sister friend! We think about your family a lot and are sending good thoughts and prayers your way.

Love,
Brenda, Bob, Josh & Johanna; March 22, 2007 at 11:41 AM
Anonymous said...: Hi Kyle and Family:

We so enjoyed having Pizza Dinner Tonight with you at Ronald McDonald House! Thanks for playing with our daughter Kelsey. It allowed us to set and clean things up for all the folks staying there and we so appreciated it. She talked about you all the way home. She kept saying that you were "Sponge Bob" and she was "Gary". We were excited to logg on and see your Blog. Our best wishes and prayers are sent your way. Thanks for sharing your story with us. Paige, Brian, and Kelsey Ballard; March 22, 2007 at 8:55 PM

posting 101

A big thank you to everyone that has posted a message to the blog! Kyle's mom & dad read the new messages to him every day and it makes him so happy to know that so many people are cheering him on.

Wanna post but don't know how? After reading a post that you would like to add your comments to, just click on post link at the bottom, login or create a new account and add your message to Kyle - if others have already posted, just click on the link that shows how many comments have already been logged and follow the same steps as above.

Really stumped? Send your comments via email to kimjlund@hotmail.com and Kim will take care of it for you!!!

Help Your Child Understand Kyle's Cancer

On February 9, 2007, Kyle was diagnosed with a Diffuse Intrinsic Pontine Glioma, an inoperable tumor in his brainstem. He was enrolled in a clinical trial for a drug called Zarnestra and completed radiation therapy in April 2007. In May 2008 Kyle’s doctor reclassified his tumor as recurring. The Zarnestra was stopped and Kyle was enrolled in a new Clinical Oncology Group trial. Treatment consists of a cocktail of three chemotherapy agents administered in 21-day cycles. Kyle discontinued this treatment 11/19/08.
Cancer is not contagious.
It is not anyone's fault when a person gets cancer; doctors do not know what causes it, and the doctors are working hard to better understand childhood cancers all the time.
Chemotherapy and/or radiation therapy are used to destroy the cancer cells; some of the good cells also get destroyed and therefore there can be side effects such as hair loss, weight gain or loss, fatigue, and lowered resistance to infections.
Kyle is still the same person he was before he got sick and wants to be treated the same.
Please encourage your child to share any questions or concerns with you.