Click here to read: http://seattlepi.nwsource.com/huskies/306406_johns07.html See all the photos at: http://www.kylerogerphotos.blogspot.com/
3.15.2007
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Kyle learns to surf!
Thanks Make-A-Wish!
Cola rips it too!
One seriously big valentine for Kyle
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
Kyle had just celebrated his sixth birthday when we discovered he had a rare brain stem tumor (a diffuse intrinsic pontine glioma) on February 9, 2007. For the next two years we lived our lives at warp speed sharing adventures, laughs and smiles as we embraced every moment. Kyle Jacob Roger January 17, 2001 - February 7, 2009.
Best of Western Washington October 2010
He'e Nalu!!
Kyle learns to surf!
Thanks Make-A-Wish!
a video of Kyle's life
Photo Albums!
posting 101
A big thank you to everyone that has posted a message to the blog! Kyle's mom & dad read the new messages to him every day and it makes him so happy to know that so many people are cheering him on.
Wanna post but don't know how? After reading a post that you would like to add your comments to, just click on post link at the bottom, login or create a new account and add your message to Kyle - if others have already posted, just click on the link that shows how many comments have already been logged and follow the same steps as above. Really stumped? Send your comments via email to kimjlund@hotmail.com and Kim will take care of it for you!!!
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THE KYLE ROGER FUND
Donations to THE KYLE ROGER FUND can be made at any Bank of America. You can also donate with your paypal account or any major credit card by clicking the "make a donation" button below. Thank you.
Touching Tribute in the Seattle P-I
Greg Johns wrote a beautiful story about Kyle in Monday's Seattle P-I. We are grateful to Greg for his touching words about Kyle over the last two years.
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
Help Your Child Understand Kyle's Cancer
- On February 9, 2007, Kyle was diagnosed with a Diffuse Intrinsic Pontine Glioma, an inoperable tumor in his brainstem. He was enrolled in a clinical trial for a drug called Zarnestra and completed radiation therapy in April 2007. In May 2008 Kyle’s doctor reclassified his tumor as recurring. The Zarnestra was stopped and Kyle was enrolled in a new Clinical Oncology Group trial. Treatment consists of a cocktail of three chemotherapy agents administered in 21-day cycles. Kyle discontinued this treatment 11/19/08.
- Cancer is not contagious.
- It is not anyone's fault when a person gets cancer; doctors do not know what causes it, and the doctors are working hard to better understand childhood cancers all the time.
- Chemotherapy and/or radiation therapy are used to destroy the cancer cells; some of the good cells also get destroyed and therefore there can be side effects such as hair loss, weight gain or loss, fatigue, and lowered resistance to infections.
- Kyle is still the same person he was before he got sick and wants to be treated the same.
- Please encourage your child to share any questions or concerns with you.
Christin's Diary
T-SHIRTS, BUMPER STICKERS & WRISTBANDS for sale!
Looking for a way to support the research of Dr. Jim Olson in honor of Kyle? You can wear a "Kylie shirt" or wristband!
Email kylerogerfund@hotmail.com and you can join us as we continue the battle against pediatric brain cancer.
Adult shirts are $15.00, children's shirts are $10.00. Wristbands and bumper stickers are $3.00 each. Please include your size preference and address.
Cola rips it too!
Blog Archive
KYLE ON KIRO 710 AM
CLICK HERE: http://sea.bonnint.net/2007/0307husky.mp3
KYLE ON KING 5 TV
KYLE IN THE BELLINGHAM HERALD
KYLE & NICOLAS ROCKIN' OUT WITH RECESS MONKEY
EMP CONCERT - WHAT A TURNOUT!
What a show! Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
Video from the event at: www.kylerogervideos.blogspot.com
Love from the Cottage School
One seriously big valentine for Kyle
LULU'S FUNDRAISER - HUGE SUCCESS!
Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
KYLE'S JOURNAL
Stay updated on Kyle's treatment and progress. Read journal entries from Kyle's family at: www.kylerogerjournal.blogspot.com
Other Cancer Resources
Kyle's Family Photos
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
7 comments:
Hi Kylie -
I had fun with you on Tuesday frosting your auntie's birthday cake (make sure to tell your Mom that I was very impressed with her three colored layered cake!). I know that you weren't feeling well but I thought you were a real trooper and kept a smile on your face and a positive attitude, despite your tummy ache. I sure hope you felt better later on so you could eat some of that yummy cake.
As for the Macy's shopping event, as if I needed another excuse to go shopping and spend money? Your fan club sure comes up with cool fundraising events.
Hugs and Kisses from Anne-Marie & Chris
Hi Kyle-
Wow! Today was such a busy day in our classroom. The kids were so happy to be wearing their new "Kylie" shirts. I had so much fun making the paper cranes with you! You did such a great job. I think I need more practice! Wasn't it cool that the paper you chose was the exact same color as your pink nail polish? I think all of your friends had fun too, even though that was a super challenging project. I hope that when you look at all of those beautiful birds strung together, you will remember how much everyone in our class really cares about you.
My favorite part of the day was when you got to read to me in the home center. You are a fabulous reader and such a smart cookie! I love that you always try your best and you never give up.
I think that when I go shopping at Macy's tomorrow (along with the rest of your fan club!) I will need to buy some new sandals so I can show off my bright pink toenails!
Have a great weekend with your family, Kyle. Keep feeling better, and better, and better...!!! I can't wait to see you again soon. You are so amazing!
Love-
Mrs. DeJong
Hi Kyle!
It was so great to see you at school today and play Legos with you and Collin. I also loved watching your movie!
It was exciting to see you without your eye patch. We are so glad you aren't seeing double right now!
My mom just helped me watch the video from when you were on t.v. this week. I can't believe you were on t.v.!
Have a great weekend! Hope you can come back to Happy Valley next Friday.
Love, Erik
Hi Kylie,
I talked to Lindsey yesterday and she said that you don't have to wear your eyepatch any more. That's so exciting! Although I do really like it when you look like a pirate.
I don't know about you, but I'm pretty excited that Lindsey is here and that you, Kola, Lindsey and your mom are all gonna get to hang out. Pretty cool.
I love you, Buddy and I'm so glad that you're doing so well!
Kisses from your nose down to your toes!
Love, ERIN
Kyle,
I just had a chance to watch you and Nicholas playing football on the news. What an amazing life you are leading!
This weekend my son Alex had a chance to go to a pirate birthday party. As a party favor he took home a black eye patch. Every time I looked at him with it on, I thought of you. The two of you really look very similar. He wanted to wear it everywhere, which included a trip to REI. I am sure many people were wondering if he was you. It seems like the whole world is thinking about you and sending you their healing energy.
I saw your mom Thursday and she said you're not going to be wearing your eye patch anymore. I am sooo happy for you. Shrink bump, shrink bump, shrink bump, shrink.
This week let the countdown begin, 10-9-8-7-6...
We love you!
Mrs. Clark
Happy Monday Kylie! Have a good week and I hope that all of your treatments this week go well. I'm glad you had a good weekend with Campbell at her birthday. I will see you Tuesday night, with your brother in tow.
Love, Chris & Anne-Marie
Hey Kyle,
I got Paul a wristband (of course!), and guess what he told me? It is the first time, EVER, that he has worn a bracelet of any kind! Isn't that funny? He is 41 years old and he's never, ever worn anything but a watch. After he put it on, I could see why he never wears them - he looks funny with it on!! (We probably shouldn't tell him he looks funny, huh?) It doesn't matter, though, because I think that for you, he would wear a chicken on his head!
We are still praying tons and bunches for you. We hope that your week goes ok. Stay snuggly in those snow leopard pants!!
Oh, I almost forgot. Thanks for giving me an excuse to go shopping at the Bon on Saturday! I needed some things to go with my new "Kylie Gear" wardrobe. Did your mom tell you that I wear three wristbands at a time because people keep buying them off of my arm? So many people want to support you! The other day the people at Bank of America asked if they could order shirts!
We love you,
Julie, Paul, Andrea and Shane
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