Wow! I can't believe that it is the last week of summer vacation and the boys will be starting school again. But I have no complaints as this has been a truly amazing time for us. We have had many great experiences together. The boys were able to travel to Hawaii with my sister and their grandparents, travel to Quebec to see their dad's family, take a camping trip to Lopez Island, spend 3 days sailing in the Gulf Islands, swim at the pool, spend a week at horse camp, and play with their friends. It makes me tired just to write it all down!
Kyle has been able to maintain this crazy pace even while continuing his chemo. He is so tough. When he gets frustrated that he isn't performing athletically as well as he would like I try to remind him that most people who are taking a single chemo, let alone 3 at a time, are too tired to even try. Yet here he is, riding horses, swimming in the pool, riding his scooter. Sure he struggles more now than before, but he is relentless with his effort. He competitive spirit just doesn't know the meaning of the word quit. And his brother is just as amazing. He is kind and patient with Kyle. He looks out for him when they are playing with their friends. He encourages him when he gets frustrated. He goes to sleep in my bed with him because Kyle doesn't want to sleep alone. I couldn't be more proud.
We are heading to Children's again this Wednesday for yet another MRI. If the MRI is still showing Kyle's tumor as stable he will begin the next round of chemo Wednesday afternoon. Please keep Kyle in your prayers. Each of these MRI's seems more important yet more uncertain as we continue this journey.
I would also like to ask that you take a moment to think positive thoughts for Mara Adams as her parents find themselves at a crossroad in her battle with DIPG. Heather, Mara's mom, has been a wonderful friend since I met her this winter. It is a blessing to have someone to talk with who can really understand how crazy this whole mess really is. We are continually faced with choices that no parent ever wants to have to make, and Adam's are facing one more of those moments.