Another milestone in the journey we are on....Kyle started second grade yesterday! They boys are going to a new school this year, Wade King Elementary. The school was built last year and the boundaries for all the elementary schools were re-drawn. It is exciting to be in a new place, but Happy Valley had been so wonderful for the boys and I know they were a little sad yesterday to not see all the familiar surroundings.
Last week Kyle had an MRI and it shows that the tumor is still relatively stable. But with that said, he is showing more symptoms than he did at the start of summer. We have decided to have a shunt placed to help drain the excess brain fluid. His ventricles (think of them as the overflow tanks for brain fluid) are large, especially when compared to this time last year. Now they are pressing on the surrounding brain tissue and causing edema. This could be the cause of his increasing symptoms. Our hope is that by draining the brain fluid and decreasing the edema around the ventricles some of the symptoms that have developed will be relieved. If that is what happens we will stick with our current treatment.
The biggest change for Kyle is his balance. He is unstable enough that he isn't able to ride his bike anymore. Anyone who knows Kyle knows this is a big blow. Kyle lived on his bike. We are currently looking for a tandem bike that we can ride with him on the trails around Bellingham. I have seen a few where the backseat is lower and easy for a kid to ride with an adult. Of course it is an expensive proposition, so if anyone has a connection to a bike shop or manufacturer and might be able to help us find a bike that is good quality but at a decent price we would be very grateful. Please send us an email at email@example.com if you think you can help.
Thanks for checking in with us. It makes Kyle very happy to see posts from his friends and supporters.