After a long day at Seattle Children's watching Kyle lay motionless for his MRI, get poked for his i.v. (which is used for MRI contrast, a blood draw, and one of three chemos), swallow some pretty big pills, go through his paces for a clinic neuro exam, and drink chemo meds that taste beyond yucky, we can finally stop to catch our breath. Kyle's MRI showed his tumor is stable since beginning his new "chemo cocktail" and we feel truly blessed.
More tomorrow, but it is time for some sleep... Thank you for all the prayers and good thoughts today. The positive energy gives us strength....
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Kyle learns to surf!
Thanks Make-A-Wish!
Cola rips it too!
One seriously big valentine for Kyle
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
Kyle had just celebrated his sixth birthday when we discovered he had a rare brain stem tumor (a diffuse intrinsic pontine glioma) on February 9, 2007. For the next two years we lived our lives at warp speed sharing adventures, laughs and smiles as we embraced every moment. Kyle Jacob Roger January 17, 2001 - February 7, 2009.
Best of Western Washington October 2010
He'e Nalu!!
Kyle learns to surf!
Thanks Make-A-Wish!
a video of Kyle's life
Photo Albums!
posting 101
A big thank you to everyone that has posted a message to the blog! Kyle's mom & dad read the new messages to him every day and it makes him so happy to know that so many people are cheering him on.
Wanna post but don't know how? After reading a post that you would like to add your comments to, just click on post link at the bottom, login or create a new account and add your message to Kyle - if others have already posted, just click on the link that shows how many comments have already been logged and follow the same steps as above. Really stumped? Send your comments via email to kimjlund@hotmail.com and Kim will take care of it for you!!!
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THE KYLE ROGER FUND
Donations to THE KYLE ROGER FUND can be made at any Bank of America. You can also donate with your paypal account or any major credit card by clicking the "make a donation" button below. Thank you.
Touching Tribute in the Seattle P-I
Greg Johns wrote a beautiful story about Kyle in Monday's Seattle P-I. We are grateful to Greg for his touching words about Kyle over the last two years.
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
Help Your Child Understand Kyle's Cancer
- On February 9, 2007, Kyle was diagnosed with a Diffuse Intrinsic Pontine Glioma, an inoperable tumor in his brainstem. He was enrolled in a clinical trial for a drug called Zarnestra and completed radiation therapy in April 2007. In May 2008 Kyle’s doctor reclassified his tumor as recurring. The Zarnestra was stopped and Kyle was enrolled in a new Clinical Oncology Group trial. Treatment consists of a cocktail of three chemotherapy agents administered in 21-day cycles. Kyle discontinued this treatment 11/19/08.
- Cancer is not contagious.
- It is not anyone's fault when a person gets cancer; doctors do not know what causes it, and the doctors are working hard to better understand childhood cancers all the time.
- Chemotherapy and/or radiation therapy are used to destroy the cancer cells; some of the good cells also get destroyed and therefore there can be side effects such as hair loss, weight gain or loss, fatigue, and lowered resistance to infections.
- Kyle is still the same person he was before he got sick and wants to be treated the same.
- Please encourage your child to share any questions or concerns with you.
Christin's Diary
T-SHIRTS, BUMPER STICKERS & WRISTBANDS for sale!
Looking for a way to support the research of Dr. Jim Olson in honor of Kyle? You can wear a "Kylie shirt" or wristband!
Email kylerogerfund@hotmail.com and you can join us as we continue the battle against pediatric brain cancer.
Adult shirts are $15.00, children's shirts are $10.00. Wristbands and bumper stickers are $3.00 each. Please include your size preference and address.
Cola rips it too!
Blog Archive
KYLE ON KIRO 710 AM
CLICK HERE: http://sea.bonnint.net/2007/0307husky.mp3
KYLE ON KING 5 TV
KYLE IN THE BELLINGHAM HERALD
KYLE & NICOLAS ROCKIN' OUT WITH RECESS MONKEY
EMP CONCERT - WHAT A TURNOUT!
What a show! Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
Video from the event at: www.kylerogervideos.blogspot.com
Love from the Cottage School
One seriously big valentine for Kyle
LULU'S FUNDRAISER - HUGE SUCCESS!
Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
KYLE'S JOURNAL
Stay updated on Kyle's treatment and progress. Read journal entries from Kyle's family at: www.kylerogerjournal.blogspot.com
Other Cancer Resources
Kyle's Family Photos
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
10 comments:
kyle,
we are so happy to hear the good news. you are the most amazing kid. we have been thinking about you a ton and hope to see you soon.
lots of love,
tracy, brady, sage & skye
Kyle,
We are so excited to hear your great news. You are so strong and full of so much courage, you inspire us all!
Love and prayers,
Tiffany, Jon, Carson and Hailey
Kyle,
I am so happy to hear your wonderful news. Yesterday I was at Mrs. Stevens' house and the first thing she showed me on her porch as I arrived was her pot of forget-me-nots. Unforgettable...that's what you are!
Love,
Mrs. Clark
Stable is wonderful news
Yea, awesome,great, wonderful and amazing all in one sentence is how we feel about the great news and to have you and Nicolas home-time to play before your next adventure. Love, Sam and Dane
YEAH! GOOD NEWS IS THE BEST! We are so excited you are going to join us for for a sailing adventure. See you in a couple of weeks.
Big High 5,
The Westras
Hi Kylie!
I'm glad you got to hear some good news this week! I'm so proud of you for being so brave and strong in Seattle. IV's and yucky medicine are NO FUN!!! Keep using all your good fighting power against that ugly brain bump. I know you can do it!
I love you so much.
Love, Lindsey
Hi Kyle!
We are so happy that you have such great news and that you continue to have such courage!! You are definitely the most courageous seven year old we know!!
We hope that you found the pictures and book (that you and Erik wrote) that we left by your garage a couple days ago. Cole and I went for a walk and he was really hoping you would be outside with Lulu and Cooper... we could hear Lulu and Cooper inside though and Ellie really wanted to play with them!!
Erik has another $1000 to take to Children's for Dr. Olson's Lab Research... He's hoping he can go with you again!
Love, Stephanie, Brian, Erik, and Cole
Kyle,
So glad to hear your good news! I wish the very best for you and can't wait to see you when school starts up again in September. I have been thinking a lot about you and hoping all is well.
By the way, say "hi" to Nick too!
Mrs. White(Happy Valley)
Hi Kyle,
Do you what? I opened my mail yesterday and there was a big picture of you and Erik and me on the last day of first grade that Erik had sent me! I LOVE it and I am going to take it to room 6 so I can look at it everyday! It was great seeing you and Nicolas at Ken and Sally's. Thinking of you everyday, Mrs. Stevens
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