Unfortunately, Kyle's situation has deteriorated since our last post. The size of the tumor has caused a great deal of new swelling leading to a variety of symptoms, including a loss of hearing and the use of the right arm. This is compounded by an already growing list of difficulties such as walking and clear speech. Our hope is with the new clinical trial drug that was started on Friday (AZD2171) plus steroids will reduce the swelling and allow Kyle to regain some of his mobility and communication tools. Of course if it was only a matter of will and determination Kyle would regain all of his abilities. His never-give-up attitude remains unhindered. We ask for your continued prayers and good wishes for his recovery.
Today Kyle visited his second grade classmates at King Elementary. It was great to see so many friends and smiling faces! Kyle had been waiting to give all his friends OOO-UM-GOW-AH t-shirts. Then the snow came and winter break started 2 days early, then the flood days last week, but finally today he was able to pass out the shirts (as was his brother Nicolas who gave them to his 4th grade class too!). He also shared a couple new pieces of his various collections (he loves to collect coins, shells, rocks, crystals and snow globes). Getting out of the house was a much needed break in the new routine…big thanks to all the friends who gave Kyle hugs and high fives!
The love and support that we are receiving is bountiful. We are happy to hear messages from those who love Kyle but we aren’t always able to answer the phone or return calls in a timely manner. If you would like to come by for a visit please call first so we can arrange a time that meshes with Kyle’s routine. Thank you for understanding this is a fluid situation and schedules can change quickly. If you would like to help out in anyway (dog walking, grocery shopping, etc) the best way to get in touch is by dropping us a quick note at email@example.com.