First I want to apologize for not posting for so long. The last 8 weeks have been filled with so much activity there was little time to write it down. February flew by for all of us. We were busy with basketball, indoor soccer, and ski lessons on Sundays. The boys took a birthday trip (Jocelyn’s birthday) to Whistler during mid-winter break. Nicolas decided there that he wants to be on the Mt. Baker Race Team next year. He has no fear on the slopes. The boys skiing really jumped to the next level this season and there isn't a run at Baker they aren't willing to tackle.
The next weekend I took the boys on a wonderful, warm-weather trip to California. I want to extend a HUGE thank you to the Blackman’s, whom we have never personally met, for sharing their beautiful house with us. Their generosity made the trip possible for us. We were thrilled to spend time at Disneyland and California Adventure with the Davis Family. Shane is a great friend of Kyle and Nicolas. He is our neighbor and also a fellow first grader at Happy Valley with Kyle. His big sister, Andrea, is also wonderful to the boys. It was great to share the “Happiest Place on Earth” with our friends.
Nicolas was able to conquer is fear of roller coasters and now loves Big Thunder Mountain. Kyle filled his thrill-seeking side by trying every coaster with me. We rode Space Mountain, the Matterhorn, California Screamin’ and the Tower of Terror. We were able to round out our adventure with a couple incredible days at Newport Beach. We shopped, played games, and spent time enjoying the sand and surf.
Now here we are in the middle of March! Today is the first day of spring, soccer practices are in full swing and games begin this Saturday. We are looking forward to Easter and take to heart to reason we celebrate. Remembering the relationship between sacrifice and miracle and that enduring one brings hope for the other.
Eight incredible weeks since Kyle's last MRI. We returned to Children's yesterday and again Kyle displayed his bravery having his first MRI without sedation. What a champ! He lay motionless in the machine for almost 30 minutes. In fact, for a few minutes in the middle he actually fell asleep! We are really proud of him.
It is the next part of this post that is hard to write. How do I chose words that share what is happening yet still convey our unending belief that Kyle is a competitor and continues to use all his inner strength to fight off his brain bump? The hardest thing to say is that although Kyle continues to feel good and remains symptom free, his tumor has yet again shown growth. His doctors retain their belief that the clinical trial drug is slowing the growth so he continues the current treatment. We continue to look into other options and hope that a break-through study is just around the corner.
As always, we pray that the tumor will stabilize, that it will tire of rebuffing the enormous fight Kyle comes at it with every minute of every day. Our hope is unwavering that Kyle’s love of life, his will to win, and the prayers and good thoughts from you will ultimately make the brain bump pack it’s bags and move out.
Help us by continuing your prayers, positive meditations, and thoughts of love and healing. Not just for Kyle, Nicolas, and our family, but for all the children and families facing DIPG.
Thank you for keeping us close to your hearts, you remain close to ours.