4.05.2007
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Kyle learns to surf!
Thanks Make-A-Wish!
Cola rips it too!
One seriously big valentine for Kyle
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
Kyle had just celebrated his sixth birthday when we discovered he had a rare brain stem tumor (a diffuse intrinsic pontine glioma) on February 9, 2007. For the next two years we lived our lives at warp speed sharing adventures, laughs and smiles as we embraced every moment. Kyle Jacob Roger January 17, 2001 - February 7, 2009.
Best of Western Washington October 2010
He'e Nalu!!
Kyle learns to surf!
Thanks Make-A-Wish!
a video of Kyle's life
Photo Albums!
posting 101
A big thank you to everyone that has posted a message to the blog! Kyle's mom & dad read the new messages to him every day and it makes him so happy to know that so many people are cheering him on.
Wanna post but don't know how? After reading a post that you would like to add your comments to, just click on post link at the bottom, login or create a new account and add your message to Kyle - if others have already posted, just click on the link that shows how many comments have already been logged and follow the same steps as above. Really stumped? Send your comments via email to kimjlund@hotmail.com and Kim will take care of it for you!!!
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THE KYLE ROGER FUND
Donations to THE KYLE ROGER FUND can be made at any Bank of America. You can also donate with your paypal account or any major credit card by clicking the "make a donation" button below. Thank you.
Touching Tribute in the Seattle P-I
Greg Johns wrote a beautiful story about Kyle in Monday's Seattle P-I. We are grateful to Greg for his touching words about Kyle over the last two years.
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
Help Your Child Understand Kyle's Cancer
- On February 9, 2007, Kyle was diagnosed with a Diffuse Intrinsic Pontine Glioma, an inoperable tumor in his brainstem. He was enrolled in a clinical trial for a drug called Zarnestra and completed radiation therapy in April 2007. In May 2008 Kyle’s doctor reclassified his tumor as recurring. The Zarnestra was stopped and Kyle was enrolled in a new Clinical Oncology Group trial. Treatment consists of a cocktail of three chemotherapy agents administered in 21-day cycles. Kyle discontinued this treatment 11/19/08.
- Cancer is not contagious.
- It is not anyone's fault when a person gets cancer; doctors do not know what causes it, and the doctors are working hard to better understand childhood cancers all the time.
- Chemotherapy and/or radiation therapy are used to destroy the cancer cells; some of the good cells also get destroyed and therefore there can be side effects such as hair loss, weight gain or loss, fatigue, and lowered resistance to infections.
- Kyle is still the same person he was before he got sick and wants to be treated the same.
- Please encourage your child to share any questions or concerns with you.
Christin's Diary
T-SHIRTS, BUMPER STICKERS & WRISTBANDS for sale!
Looking for a way to support the research of Dr. Jim Olson in honor of Kyle? You can wear a "Kylie shirt" or wristband!
Email kylerogerfund@hotmail.com and you can join us as we continue the battle against pediatric brain cancer.
Adult shirts are $15.00, children's shirts are $10.00. Wristbands and bumper stickers are $3.00 each. Please include your size preference and address.
Cola rips it too!
Blog Archive
KYLE ON KIRO 710 AM
CLICK HERE: http://sea.bonnint.net/2007/0307husky.mp3
KYLE ON KING 5 TV
KYLE IN THE BELLINGHAM HERALD
KYLE & NICOLAS ROCKIN' OUT WITH RECESS MONKEY
EMP CONCERT - WHAT A TURNOUT!
What a show! Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
Video from the event at: www.kylerogervideos.blogspot.com
Love from the Cottage School
One seriously big valentine for Kyle
LULU'S FUNDRAISER - HUGE SUCCESS!
Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
KYLE'S JOURNAL
Stay updated on Kyle's treatment and progress. Read journal entries from Kyle's family at: www.kylerogerjournal.blogspot.com
Other Cancer Resources
Kyle's Family Photos
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
8 comments:
Dear Kyle,
I heard about you from Barbra Jorgenson, who is a friend of my Mom's. I was also diagnosed with a brain tumor on January 11th 2006.
Congratulations on finishing your radiation treatment. I hear that you played soccer right after and scored seven goals. I play soccer too, but I couldn't have run around and scored seven goals! I was way too tired.
That's pretty cool that you got to meet Jake Locker from the Huskies. Sounds like you guys had a good time together.
I just finished my year-long treatment from my brain tumor and I'm feeling pretty tired. I was able to beat my cancer, and I know that you will be able to beat yours too.
Your friend,
Jimmy Fowkes
Hi Kyle,
I am so happy for you!! I just heard that your bump shrunk and disappeared!! I literally was jumping up and down in my office when I just heard a little bit ago. You are such a superhero......truly amazing!! I am so excited to tell Colby the great news. There is definitely something to celebrate!!!
Hope to see you all soon. Looking forward to seeing you score some more goals for our team!!
Give your mom a great big hug for me.
You did it buddy!!!!!
Love,
Marnie
Hi Kyle!
Wow! I just heard your great news. You just made me the happiest teacher on the whole planet. I knew in my heart that you were strong enough to battle that bump! We will be celebrating big time at the DeJong house tonight!
I hope you have the best time in Florida. You deserve a great vacation.
Lots of love and hugs to you and your family.
You do have the "powa!"
Love-
Mrs. DeJong
Hey there Kylie,
All I can say is WOW! There were tears of joy flowing when Kim called and left the message - you have made many people so proud and given the gift of hope to so many others by just being your brave self. I made many calls today to spread the good news. Early on, when we first heard about your bump Cali said "Don't worry Mom, Kyle will feel better in August." She got the "feel better" part right and you beat her on the timing by far! You rock, buddy!
Much love from our house to yours and lots of hugs, too. Hope you have the best vacation in Florida!
Carrie, Jason, Cali, Max & Ava
Well, your exciting news traveled to us all the way in New York!!!! We were jumping around like crazy maniacs when we heard!!! You are absolutely amazing!!!! I knew your superhero powers could destroy that nasty brain bump!! We went out to dinner last night with family and friends and had a big toast in your honor! Can't wait to see you and give you a big hug!
Much love to you and your family!
Have a wonderful vacation in Florida!
Tracey, Harold & Hazel
xoxoxox
Hi Kyle,
It was great to see you the other day at the park. I just wanted to say..WAY TO GO KYLE!! YOU DID IT!!!!!Hope you have a great vacation.
Love, The Dentels
Hi Kyle,
Congratulations on finishing radiation and shrinking that brain bump! Your story is truely inspirational. I would love it if you, your brother and mom joined us for a swim and ice cream to celebrate at the Seattle Tennis club this summer.
Kayley Westra & Family
Kyle,
You are such a great insperation to me. You are So strong. I heard from my friend (your neighbor) Erika Smith that radiation really helped! Keep it up!
Lauren
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