2.16.2007
Kyle's Diagnosis & Treatment Plan
Kyle's diagnosis & treatment plan can be viewed at: www.kylerogerjournal.blogspot.com
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Kyle learns to surf!
Thanks Make-A-Wish!
Cola rips it too!
One seriously big valentine for Kyle
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
Kyle had just celebrated his sixth birthday when we discovered he had a rare brain stem tumor (a diffuse intrinsic pontine glioma) on February 9, 2007. For the next two years we lived our lives at warp speed sharing adventures, laughs and smiles as we embraced every moment. Kyle Jacob Roger January 17, 2001 - February 7, 2009.
Best of Western Washington October 2010
He'e Nalu!!
Kyle learns to surf!
Thanks Make-A-Wish!
a video of Kyle's life
Photo Albums!
posting 101
A big thank you to everyone that has posted a message to the blog! Kyle's mom & dad read the new messages to him every day and it makes him so happy to know that so many people are cheering him on.
Wanna post but don't know how? After reading a post that you would like to add your comments to, just click on post link at the bottom, login or create a new account and add your message to Kyle - if others have already posted, just click on the link that shows how many comments have already been logged and follow the same steps as above. Really stumped? Send your comments via email to kimjlund@hotmail.com and Kim will take care of it for you!!!
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THE KYLE ROGER FUND
Donations to THE KYLE ROGER FUND can be made at any Bank of America. You can also donate with your paypal account or any major credit card by clicking the "make a donation" button below. Thank you.
Touching Tribute in the Seattle P-I
Greg Johns wrote a beautiful story about Kyle in Monday's Seattle P-I. We are grateful to Greg for his touching words about Kyle over the last two years.
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
http://seattlepi.nwsource.com/huskies/399294_kyle09.html?source=mypi
Help Your Child Understand Kyle's Cancer
- On February 9, 2007, Kyle was diagnosed with a Diffuse Intrinsic Pontine Glioma, an inoperable tumor in his brainstem. He was enrolled in a clinical trial for a drug called Zarnestra and completed radiation therapy in April 2007. In May 2008 Kyle’s doctor reclassified his tumor as recurring. The Zarnestra was stopped and Kyle was enrolled in a new Clinical Oncology Group trial. Treatment consists of a cocktail of three chemotherapy agents administered in 21-day cycles. Kyle discontinued this treatment 11/19/08.
- Cancer is not contagious.
- It is not anyone's fault when a person gets cancer; doctors do not know what causes it, and the doctors are working hard to better understand childhood cancers all the time.
- Chemotherapy and/or radiation therapy are used to destroy the cancer cells; some of the good cells also get destroyed and therefore there can be side effects such as hair loss, weight gain or loss, fatigue, and lowered resistance to infections.
- Kyle is still the same person he was before he got sick and wants to be treated the same.
- Please encourage your child to share any questions or concerns with you.
Christin's Diary
T-SHIRTS, BUMPER STICKERS & WRISTBANDS for sale!
Looking for a way to support the research of Dr. Jim Olson in honor of Kyle? You can wear a "Kylie shirt" or wristband!
Email kylerogerfund@hotmail.com and you can join us as we continue the battle against pediatric brain cancer.
Adult shirts are $15.00, children's shirts are $10.00. Wristbands and bumper stickers are $3.00 each. Please include your size preference and address.
Cola rips it too!
Blog Archive
KYLE ON KIRO 710 AM
CLICK HERE: http://sea.bonnint.net/2007/0307husky.mp3
KYLE ON KING 5 TV
KYLE IN THE BELLINGHAM HERALD
KYLE & NICOLAS ROCKIN' OUT WITH RECESS MONKEY
EMP CONCERT - WHAT A TURNOUT!
What a show! Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
Video from the event at: www.kylerogervideos.blogspot.com
Love from the Cottage School
One seriously big valentine for Kyle
LULU'S FUNDRAISER - HUGE SUCCESS!
Details about this successful fundraiser and other upcoming events for Kyle at: www.kylerogerfund.blogspot.com
KYLE'S JOURNAL
Stay updated on Kyle's treatment and progress. Read journal entries from Kyle's family at: www.kylerogerjournal.blogspot.com
Other Cancer Resources
Kyle's Family Photos
Kyle & Nicolas at Disneyland
Chocolate Faces
Kyle, Christin and Nicolas in the snow
Jocelyn & Nicolas at Boulevard Park
Christin, Kyle, Nicolas, Melissa, Linda & Gordon at Disneyland
18 comments:
Thanks for the update...
Kyle, thought you might like to know that when I heard about that crazy tumor, I sent an e-mail to friends all over the United States, in Canada and even in Germany... and asked my friends to pray for you and your family. Hope it's a comfort to know that people everywhere are rootin' for you!!!
Have a peaceful weekend.
-Carrie Chute
We have a couple of things we'd like to send to Kyle... Is there an address where we can send it?
Thanks!
-Carrie Chute
Hi Kylie, you sound like a strong and courageous little guy and I know a lot of people are praying for you. Stay strong and know that people you've never even met are thinking and praying for you and your family.
Love,
Laurie Kuhia
Kylie - You should be feeling a big burst of energy and love right about now! Do you want to know why? Because my parent's SDA church in Olympia, WA is totally ALL praying for you right now. You're a pretty popular little tyke right now! I hope you have a fun weekend with your Pappa up in Bellingham. Maybe a repeat ski weekend? =)
Love, Chris & Anne-Marie
Nice jump on the terrain park last week, Kyle! We'll be looking for you on the Mountain on Sunday catching some more air.
We can't wait for your t-shirts and wrist bands to arrive -- very cool logo we can't wait to wear 'em!
Powa' and high fives from the Greenan Family
Glynn, Greg, Charlie and Joey
Kyle,
We are very good friend with your aunt Melissa. She has told me so many stories about you and your brother over the years. I also have two boys, Gabriel 7 and Matty 5. Both of them have been to Children's Hospital over the years, so I know that you are in great hands. While you are in Seattle Gabriel and Matty would like to set up a play date to throw the football around. Gabriel told me he would bring hid Duck football, and for this special occasion he would be honored to throw the ball with a future Husky. Are prayers are with you all the time!
Melissa and Cristin- let us know if we can bring over some food or help with anything
Thoughts and Prayers,
Amy and Josh Brooksheir
All our thoughts are with you Kyle..from Montreal & Morocco ! We hope this will give you little extra energy. We already know you have all the courage to face and fight this tumor. Stay strong !
Kyle,
You are part of a prayer chain that goes all around the world. We cannot wait to wear one of your famous t-shirts & wristbands!
Lord bless,
Tonia, hunter, quinn, & jack
Kylie - I saw your poster at TWO places today in town. You're even more famous! Your poster was at Gold's Gym and at the Sehome Starbucks! Wow, everyone is saying "Ooh Um Ga Wah, Kylie's Got Powa!" We'll be thinking of you on Tuesday!
Love, Chris & Anne-Marie
Hey Kyle,
We are going to be thinking about you like crazy and praying extra hard at 9:30 Tuesday!! Now, about the toenail polish. Here's the thing - I really don't like to call attention to my UGLY feet, so I rarely paint my toenails. But for you, I'm going to do it tonight. Andrea is too (of course, her feet are not ugly!). We don't have any good pink polish, but I did find metallic blue in my drawer. How does that sound?
We love you and your mama and your brother a WHOLE LOT! Hug each other for us. Ooo Um Gow Ah!
Julie, Paul, Andrea and Shane
Hey you cute little monkey!! Do you think Comet would let me paint her little bird toenails pink??? Does she even have toenails? Guess what?? I talked to your mama and she said that you could come and feed Comet next weekend!!! YIPP YIPP YIPPEEEEE!!
Can't wait to see that adorable little smile of yours!
We will all be thinking of you and saying our prayers tomorrow! I know you'll do just fine, you're a SUPER HERO! We love you!
xoxoxoxoxoxoxoxox Tracey, Harold, Hazel, Blaise and Comet the Blue Streak!!!
Kyle, you are in our hearts, thoughts and prayers all the way out here in Connecticut...stay strong little man! Ooo Um Gow Ah- Kylie's Got the Powa!
Katie, Nick, Nicholas, Jonathan
Hey there sweet little Kylie,
You are in my heart this morning and I know you will be so brave...there will be many prayers for you throughout the day. I know your family is taking good care of you as are those wonderful doctors and nurses. Keep being the strongest little boy you know how and stock up on those cuddles! Ooh Um Ga Wah, Kylie's Got Powa!
Our love to you,
Carrie, Jason, Cali, Max & Ava
Kyle,
Thinking extra hard about you today!! Hoping everything went well on the first day. Colby and I talk about you every night before bed and send out a special prayer.
A bear hug to you all.
Love,
Marnie and Colby
We hope that today went well for you. There were SO many people thinking about you and praying for you!!! Andrea and I painted our toenails metallic blue last night, and guess what? When Shane saw them this morning he wanted his painted too!! He also had me paint each of his thumbnails. He calls them his Powa thumbs! I'm thinking that you are setting off a whole new trend in kindergarten toes!
XOXOXOXOXO
Julie, Paul, Andrea and Shane
Hi Kylie,
I went to school with your mom a long time ago! I know that she is a lot of fun and a really good friend, so I'm sure she is taking really good care of you and making sure you smile and laugh as much as you can. Keep up your great attitude!
Christin, I was so sad to hear this news, and also so touched by the huge outpouring of support for Kylie. He sounds like an amazing boy! And you are obviously an amazing mom!
Know that, even though we haven't seen eachother in so many years, I will be thinking of you and your boys (I have two boys also, 10 months and 3) every day! If it helps, my cousin's boy went through treaqtment for a similar cancer a few years ago. It was a long battle, but he is perfectly healthy and incredibly happy. It's almost hard to remember it now, he's so completely recovered and back to his old self. I'm sure it will be the same for Kylie. You guys can beat this!!!
xo
Kim Edberg
Kyle,
I am making you a quilt and would like to know where I can send it?
....you sound like a very brave and fun kid...oo-um-gow-ah!!!
Laurie (Leah and Elsa's mom)
Hi Kyle,
I saw you on tv tonight (King 5) and wanted to tell you how strong and brave you are. You have a special angel looking out for you so I know you will be in good hands.Have your Mom or Dad email me because I want to tell them about something that I think will help you through all this and it tastes great!
You are in my prayers.
Deb
dangel11404@comcast.net
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