"Just try and catch me!" Kyle challenges Jake
in a game during a break on one of our trips to Children's
Since our last post Kyle has remained relatively stable. He has found ways to communicate with us through his own variation of sign language and spelling out words while we answer writing white boards. We have had fun visits with family and friends, taking walks on the unusually warm and sunny days of winter, and watching Kyle's WOW character (Kyliewylie) level up nearing 40. Kyle loves to play Shut the Box which his friend Andrea gave him for his birthday. And his has enjoyed playing games with many of his visitors, including a great night playing countless games of Farkle with Erin (his long time babysitter) and her friend Seth.
Last Saturday night Kyle was the honorary coach for the Squallicum High School boys varsity basketball team. He met with the players in the locker room before the game, shared high-fives with the players as they checked in and out of the game, and shot a couple baskets on the shoulders of players (with a little help from the a few other teammates). There was even a rousing cheer of "OOO-UM-GOW-AH Kylie's got the POWA!" It was an exciting night that made us all feel great.
Last night, however, we hit a road bump. Although we had a feeding tube placed for Kyle on Wednesday (for fluids and also to help him feel full after weeks of near constant requests for yogurt), Kyle was eating a little oatmeal, one of his new favorites when it is loaded up with brown sugar. He aspirated some of the oatmeal into his lungs and we took a ride to St. Joe's. Kyle was able to stabilize without any invasive measures. He has fluid in his lungs and we will watch him for any sign of pneumonia to set in over the next few days, but we were able to go home together. The meds are helping to keep his breathing near normal and he is able to rest and snuggle in the room we have plastered with all the cards and posters from his friends, classmates and supporters.
We continue to marvel at Kyle's resolve. His strength in the face of this new struggle is an inspiration that today day a bit closer to manageable for all of us. Thank you for your thoughts and prayers for Kyle and the miracle we all desire.